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Join the Natera MCADD Study: Participants Needed for Groundbreaking Research

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If you are interested in participating:

1. Call the number listed above, or send an email to DYADS@natera.com. A clinical trail team member will be able to answer any questions that you might have about participation at that time.

2. If you choose to participate, the biological mother will then signa a consent, and any participating children under 17 will give assent. Any children over 18 will also sign a consent.

3. Then, the blood draw will be arranged. We have a nationwide network of mobile phlebotomists who will be able to come to the participating families to get the blood draws so participants won't need to travel for this study. However, if there are cases when the child is going to see a doctor or has a home nurse, arrangements can be made to send the kit for this study directly to the family so they can have the blood drawn in whatever manner they want such as at home by their own nurse or at the child's clinic where the family is familiar. And if obtaining a blood draw is not possible, a cheek swab can be arranged instead.

4. There will also be compensation provided to the participating families for this study. Compensation is included for the blood draws and for obtaining medical records so there is a financial benefit to participants. This study is available to individuals in the United States. No results of the study will be given to the participating families. However, participating families will be helping the future development of a non-invasive screen that will be offered to families to screen a fetus for the risk of MCADD. Participation in the study would help provide advancements to prenatal screening options for this and other genetic conditions in pregnancy.


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Minutes Matter 

Minutes Matter, a non-profit organization dedicated to saving the lives of newborns by advocating to prevent delays in the detection of MCADD through timely Newborn Screening, by raising awareness of the disorder through education, and offering a community of support for those diagnosed with and affected by MCADD.

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