In Loving Memory....
This page is dedicated to the precious lives lost to MCADD. Behind every name is a deeply loved child. Their lives, though heartbreakingly short, have left an everlasting impact.
We honor these individuals not only in remembrance, but with purpose. By sharing their stories, we acknowledge the pain families carry with them, and reaffirm why awareness, early detection, and timely care are so critical. Every life remembered here strengthens our resolve to pursue our mission.
Days matter. Hours matter. Minutes Matter.
Rory
Born on October 26, 2025 in Minnesota. Lived and loved for four (4) days. Newborn Screening Results received Day 5.
Emery
Born on July 15, 2021 in Maryland. Lived and loved for one (1) day. Newborn Screening Results received Day 3.
Everett "Rhett"
Born in Virginia on August 26, 2017. Lived and loved for five (5) days. Newborn Screening Results received Day 7.
Adrianna Nicole
Born in 2014 in New York. Lived and loved for two (2) days. Newborn Screening Results received Day 8.
Bryson
Born on February 1, 2012 in North Carolina. Lived and loved for two (2) days. Newborn Screening Results received Day 7.
Odin
Born in Australia. Lived and loved for three (3) days. Newborn Screening Results received more than one week after birth.